Michelle's story

Erythropoietic protoporphyria (EPP)

Patient Voice spoke with Michelle Capon about the immense mental and physical impact that porphyria can have on those who live with the rare condition.

Seeking to understand the rare disease lurking in my family’s DNA

In 2021, I discovered that I’d lived my entire life with a rare genetic condition called Fabry disease. What I didn’t realize, however, was that my diagnosis was only the beginning of an entirely new set of challenges.

In conversation with SRx Health’s Adesh Vora

Industry Voice spoke with Adesh Vora, Founder, President, and CEO of SRx Health Solutions, to explore the patient care gaps that inspired him to found his company, discuss the challenges associated with delivering patient-centric care models, and learn why he’s optimistic that the future will be bright for those living with chronic illness and rare disease.