Valeriya & Yaro's story

Lissencephaly & Lennox-Gastaut syndrome

Patient Voice spoke with Valeriya Demydenko about sharing her son Yaro’s health journey on social media, and why she maintains a transparent dialogue about the difficult and joyful moments of their life.

Understanding CLL

Patient Voice spoke with Dr. Philip Kuruvilla about chronic lymphocytic leukemia (CLL), the most common form of leukemia found in adults. He explains how the disease is diagnosed, monitored, and treated, and describes why it’s a time of profound hope for patients and their loved ones.

In conversation with Ultragenyx Canada’s Monty Keast

Industry Voice connected with Ultragenyx Canada’s Monty Keast to explore why he’s passionate about bringing novel therapies to underserved patient communities and why rare diseases must be treated differently than other, more common conditions.