Patient Voice

A quiet kind of love: How ordinary yet meaningful gestures became my new version of romance

Nocturnal epilepsy has changed how I think about love. Instead of sweeping romantic gestures, I’ve come to appreciate love that shows up as quiet, steady acts of care.

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Stepping out from the shadows: Prurigo nodularis community uniting to raise awareness, advocate for access to targeted treatments

Novel therapies are bringing hope — and clearer skin — to Canadians living with the debilitating skin condition. Now, advocates are teaming up to ensure that relief is within reach for those who need it.

PERSPECTIVES

Understanding C3G and IC-MPGN

Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).

Latest Features

Shorts

The race to find a stem cell donor—and the mission it inspired: Mai’s story

Acute Myeloid Leukemia (AML)

Mai Duong's aggressive leukemia diagnosis led to a devastating discovery: because of her Vietnamese heritage, she had almost no chance of finding a stem cell match. Her survival, made possible by a complete stranger, inspired her to close the donor diversity gap for all Canadians in need.

Perspectives

Friendship as medicine: How building true connections became my healing

Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.‍

LONGFORMS

Falling through the cracks: How stigma, screening gaps, and inequitable access to care are failing Canadians with hepatitis delta virus

The hepatitis delta virus can progress quickly and quietly, and historically Canada’s response has been slow and uncoordinated. Patients, clinicians, and public health advocates are working tirelessly to change that.

SHORTS

Shorts

Reconnecting with herself following years of medical trauma: Montana’s story

Complex health journey

Patient Voice spoke with Montana Skurka about her lifelong health challenges that began in her youth, and how she’s come to redefine “well-being” as an adult.

SHORTS

Shorts

Keeping Kitty’s memory alive through fashion: Viv’s story

Women’s cancers + Parent loss

Patient Voice spoke with Viv Chan about losing her mother, Kitty, to cancer, and the unique tribute she’s created to honour her memory.

SHORTS

Shorts

Illustrating the reality of migraine: Shruti’s struggle to be taken seriously

Migraine

Thirteen thousand kilometres from home and incapacitated by the fog of migraine, Shruti couldn’t work, couldn’t parent, and was beginning to lose hope in an easier future. But, with the help of the migraine community, she was able to find her voice.

SHORTS

Shorts

Building the community she wishes had existed for her own mother: MJ’s story

Breast Cancer

Learn how MJ DeCoteau turned her mother’s death into a mission — building a community of support, sisterhood, and advocacy a new generation of Canadians impacted by breast cancer needed.

SHORTS

Shorts

Teaching by example: How Alex learned self-advocacy through rare kidney disease

Membranoproliferative glomerulonephritis

Alex was on maternity leave from her career in the classroom when she was diagnosed with MPGN, an ultra-rare kidney disease that threatened her future as both a teacher and a mom.