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Perspectives

Perspectives

Mar 2023

Michelle's story

Breast cancer

Perspectives

Mar 2023

Alyssa's story

Multiple Myeloma

Perspectives

Mar 2023

Francine & Joseph’s story

Sanfilippo syndrome (MPS III)

  

Community Voices

Feb 2023

Stronger and wiser: A woman’s trail guide to aging

Life is a journey. As we travel the roads of our years, we’re faced with many branching paths — in our careers, in our personal relationships, and in our health.

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Community Voices

February 2022

A glimpse into the busy life of a rare disease 'super mom': Q&A with Kyla Thomson

Throughout her daughter Bella's ongoing health challenges, Kyla Thomson (@kylact) has found support, encouragement and connection through social media platforms like TikTok and Instagram.

Community Voices

Community Voices

Jan 2023

Day in the life of a young person living with arthritis

Community Voices

Mar 2022

Remembering and honouring Mario La Valle: A heartfelt Q&A with CTV News' William Aiello

Community Voices

Feb 2022

Lilianna Wilde talks career, kindness and her personal connection to rare disease

What's trending

@patientvoice Globally, 1 in 10 women lives with endometriosis. It is an often debilitating condition with a myriad of symptoms, but here you are watching one of the most common symptoms; chronic and extreme pain. #endometriosis #livingwithendometriosis #livingwithendo #endometriosisawareness #endomitriosisstrong #endometriosischeck #endopain #endopainrelief #endopainisreal #healthcommunity #healthempowerment #canadianhealthcare #patientsupport ♬ original sound - Ryan Mack
@patientvoice Your story matters 🫶 #patientstorytime #patientstories #myhealthjourney #patientadvocacytiktok #diagnosisjourney #communitysupport ♬ original sound - m gewehr
@patientvoice Don’t we all have that favourite nurse? 👀 #infusionday #myfavoritenurse #yourhealthmatters #patientstorytime #patientadvocacytiktok #healthempowerment #careaboutrare #rarediseaseawareness ♬ You are My Favorite Jon Kovach Jr Original sound - Speaker 🎤 Jon Kovach Jr

Stories

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Mar 2021

Article

Charlotte's next act: Life after lymphoma

In 2018, diffuse large B-cell lymphoma (DLBCL) nearly robbed Charlotte of her life. Now, thanks to cell therapies, she’s savouring every moment.

Perspectives

Jan 2023

Munira's story

Multiple Myeloma

Perspectives

Dec 2022

Isabelle's story

Diffuse Intrinsic Pontine Glioma (DIPG)

Perspectives

Oct 2022

Chris & Bert's story

Amyotrophic Lateral Sclerosis (ALS)

Perspectives

Aug 2022

Ian's story

Pompe disease

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