Patient Voice

Ben & Katherine's story

Patient Voice spoke with Ben and Katherine in a feature that explores Ben’s ongoing recovery from a traumatic brain injury and the loving bond that’s kept Katherine by his side.

FEATURE

LONGFORMS

Stories from the frontlines of the fight for access to innovative therapies

Disease-altering medicines are being developed at an astounding rate – so why can’t Canadian rare disease patients secure timely access to them?

Perspectives

SHORTS

Catherine's story

Patient Voice spoke with Catherine Mulvale about the pain — and the rare moments of beauty — associated with caring for a parent living with dementia.

Chantale's story

Appendix cancer

Patient Voice spoke with Chantale Thurston about her journey in discovering she had appendix cancer and the need for more compassion in cancer care.

Adventures in dating: A guide to navigating new relationships after cancer

Following my breast cancer diagnosis and double mastectomy, I found the mere thought of dating — or being romantic — daunting. Now, six years and many therapy sessions later, I’m still re-learning to love my body and embrace my sexuality.

Industry Voice

In conversation with SRx Health’s Adesh Vora

Industry Voice spoke with Adesh Vora, Founder, President, and CEO of SRx Health Solutions, to explore the patient care gaps that inspired him to found his company, discuss the challenges associated with delivering patient-centric care models, and learn why he’s optimistic that the future will be bright for those living with chronic illness and rare disease.

SHORTS

Shorts

Mike’s story

Ramsay Hunt syndrome

Patient Voice spoke with Mike Shoreman about how a rare diagnosis deeply impacted his mental health, and why storytelling has played a indispensable role in his ongoing recovery.

SHORTS

Shorts

Amanda and Kimberly's story

tuberous sclerosis complex

Patient Voice spoke with Amanda Cecconi about her sister Kimberly’s tuberous sclerosis complex diagnosis, the balance of sisterhood and caregiving, and her family’s advocacy journey.

SHORTS

Shorts

Unstoppable: Sarah’s journey from coma to altar and beyond

Granulomatosis with polyangiitis (GPA)

Sarah Kempinska’s rare form of severe ANCA vasculitis saw her in a medically induced coma just days before her wedding. As the one-year anniversary of her marriage approaches, Sarah is thriving, but the struggle of living with the disease remains.