Patient Voice spoke with Ben and Katherine in a feature that explores Ben’s ongoing recovery from a traumatic brain injury and the loving bond that’s kept Katherine by his side.
Disease-altering medicines are being developed at an astounding rate – so why can’t Canadian rare disease patients secure timely access to them?
Patient Voice spoke with Catherine Mulvale about the pain — and the rare moments of beauty — associated with caring for a parent living with dementia.
Rare autoinflammatory disease
Patient Voice sat down with Daniel Kinchlea, a passionate young rare disease advocate and published children’s book author.
Last year, we defined patient engagement and committed to embedding patient experience into Canada’s health care system. This year must be about brave, authentic, and meaningful alliances that bring these ideas to life.
Multiple pulmonary arterial hypertension (PAH) therapies are available to patients in other countries — so why are Canadians waiting longer to receive access to them?
Parkinson’s disease
Patient Voice sat down with Caitlin Nagy to discuss how she’s working to change the narrative for women living with Parkinson’s disease.
Breast cancer
Patient Voice spoke to Robby Spring about her breast cancer diagnosis, and why she’s chosen to share her hair regrowth journey so openly.
Chronic myeloid leukemia
Patient Voice spoke to Misshka Gupta about the experience of being diagnosed with leukemia as a young adult, and how she’s learned to coexist with cancer.