Patient Voice spoke with Reine Hodroj about the role that patient organizations can play in helping to combat the isolation of living with a rare inflammatory condition like Behçet’s.
Patient Voice spoke with Catherine Mulvale about the pain, and the rare moments of beauty, associated with caring for a parent living with dementia.
Patient Voice spoke with Lucas Locke about his family’s experience with Li-Fraumeni syndrome and his choice to not let it affect his life.
Patient Voice spoke with oncology mom and rare cancer survivor Sarah DeMelo about the challenges of balancing her son Benjamin’s cancer journey with that of her own.
Patient Voice spoke with David Vance about his frustrating journey with hyperacusis, a painful sensitivity to sound that leaves him seeking rare moments of escape.
Patient Voice spoke with Shakhnoza Nasim about her family’s journey with grief following the loss of her first child, Muhubbat, who was born still.
Patient Voice spoke with entertainer and writer Daniel Stolfi to find out how important of a role comedy has played in his cancer recovery journey.
Patient Voice spoke with online creator and HIV advocate Myles Sexton about their journey to reinvent their life after being diagnosed with HIV.
Patient Voice spoke with Eli about being diagnosed with LADA at 30 years old as well as what inspired him to co-found a platform for fellow diabetes sufferers.
Patient Voice spoke with cancer advocate Jason Manuge about his mother’s experience with colon cancer and how it’s shaped the way he views his own diagnosis today.
Patient Voice spoke with Lorraine Lowry about being diagnosed with borderline personality disorder (BPD) and ADHD, and how these diagnoses have impacted her parenting.
Patient Voice spoke with Allen Chankowsky about receiving a terminal cancer diagnosis and how, seven years later, he continues to defy all expectations.
Patient Voice spoke with Neil Merovitch about the concept of disability, and the influence of ableism in the scientific community as it has manifested in his own life.
Karine’s son Thomas was diagnosed with growth hormone deficiency at five years old. But now, he’s doing better than ever.
Patient Voice spoke with Cheryl Petruk about how her late husband Eugene’s rare blood cancer journey has inspired a lifetime of advocacy.
Patient Voice sat down with Nick Ashawasega to talk about the intersection of intergenerational trauma, mental health, and chronic illness in an impactful feature.
Patient Voice spoke with Mercedes Palermo about her daughter Camila’s autism diagnosis and their journey with behavioural therapy and advocacy.
Patient Voice spoke with Justin Loizos about discovering he was living with multiple sclerosis and how that diagnosis has deeply impacted his life and entrepreneurship goals.
Patient Voice spoke with Amanda McCallum about learning to manage the incurable pain of Ehlers-Danlos syndrome.
Patient Voice spoke with Ben and Katherine in a 3-part series that explores Ben’s ongoing recovery from a traumatic brain injury and the loving bond that’s kept Katherine by his side.
Patient Voice spoke with mental health advocate Heidi Fischer about taking control of her journey and the importance of community.
Patient Voice spoke with Angela Scalisi to learn about what—and who—motivates her to raise vital funds for brain cancer research in Canada.
Patient Voice spoke with Deana Wilson about her son Liam’s cystic fibrosis journey and how he has become self-empowered in making his voice heard.
Patient Voice spoke with Athina Hall to understand craniocervical instability and what needs to be done for chronic illness patients in Canada.
Patient Voice spoke with Renee Abrenica about the important role that her gym community played throughout her metastatic melanoma journey.
Patient Voice spoke with Leah Haynes about eliminating stigma around menstrual pain and her creation of a positive space for endometriosis advocacy.
Patient Voice spoke with Tami Ellis about the layered impact of endometriosis and the power in advocating for a diagnosis.
Patient Voice spoke with Emily Pinckard about CTEPH, a rare and potentially fatal lung disease, and how it’s changed the course of her life.
Patient Voice spoke with Ally Ladak about raising awareness of what matters to him and getting involved in the community.
Patient Voice spoke with Pamela Fortier from Montreal, QC, about finding out she had Cowden syndrome and what it’s meant for her life ever since.
Patient Voice spoke with Christine de la Cruz, a schoolteacher born with Crouzon syndrome from Toronto, ON, who uses her experience to teach students about diversity and inclusion.
Patient Voice spoke with Michelle Friesen, a breast cancer survivor from Calgary, AB. She speaks about the importance of screening younger patients, survivorship, support, and reconciling with her body post-cancer.
Patient Voice spoke with Alyssa Dickey, a Toronto, ON-based stay-at-home mom and multiple myeloma advocate about the uncertainty that goes hand-in-hand with a blood cancer diagnosis.
Kathleen reflects on challenges and triumphs from her FOP journey.
Fatoumata’s quest to identify the rare condition affecting her family.
Mark explores his evolution from professional athlete to advocate.
Andrew shares how LCHAD continues to impact nearly every aspect of his life.
Olivia opens up about her 12-year battle with paroxysmal nocturnal hemoglobinuria (PNH).
Alice explores the unique challenges that come with balancing a busy life and transitioning to adult care.
Kim shares how she ultimately arrived at an HAE diagnosis.
Sumaiya and Ibrahim share their journey with Duchenne muscular dystrophy.
Morning show host Sandra Plagakis and her frustrating odyssey to being diagnosed with myasthenia gravis.
Jules shares why she chooses to confront CCA with hope and optimism.
An anonymous patient discusses the stigma of living with a rare, inherited disorder like HoFH.
When I was a child in Tanzania, I could see Mount Kilimanjaro from my window, mighty and immovable. Permanent. When you’re young, so much of life feels like that mountain. It’s unlimited and it’s not going anywhere. But we aren’t mountains.
Patient Voice spoke with Michal and Jackie Borkowski about the loss of their daughter, Isabelle or ‘Isa’, to a rare, deadly and especially cruel form of brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG).
Bert and I had only been together for about a month when we decided to go on a canoe trip in Algonquin Park.
Patient Voice spoke with musician Melanie Goldman about borderline personality disorder and how it’s shaping her future.
Politics has always been a passion of mine. I studied political and social sciences at university and I’m acutely aware of the flaws in how our local governments are run.
The kids on Deccan’s hockey team are all so focused on the future. They’re on the ice five or six times a week, and their parents are all so optimistic and full of dreams.
In 2011, I went from feeling fine on Friday to being on death’s door by Monday. I was admitted to the hospital with my eyes swollen shut and blisters covering 95% of my body.
I’ve found, in medicine, that the routes people take to find their careers aren’t always planned. Often what happens is, along the way, there’s some role model, some person who’s doing something good and interesting, and it makes you think: ‘That’s so cool, I could do that. It's not what I was planning, but I want to try it.’
In April, it was snowing and snowing and snowing. As Canadians, we know it’s probably going to snow in April, but when it does, we’re still like: ‘Are you kidding me? Seriously?’
I initially wanted to be a surgeon because a cardiac surgeon saved my father’s life. I started medical school expecting to go that route. But then I fell in love with family medicine.
It was a joke when I was a kid that my second home was the hospital. My hands would swell up to the size of a baseball.
Since I moved to Canada from Trinidad and Tobago, I’ve always been on the go — working, raising my children, and spending time with family.
I started having migraines when I was five years old, growing up in Poland. I remember missing school, lying at home in bed with the lights off.
I remember being at the doctor with my mom as a teenager and him asking if I was active in sports. My mom laughed. ‘Is guitar a sport?
I never thought that I’d get cancer. I’ve been a vegetarian for 25 years, took yoga classes and ran half marathons. I've backpacked around the world, climbed Kilimanjaro, and lived in four countries. I was healthy and had a full life.
Patient Voice spoke with Beth Vandstone about her daughter Madi’s cystic fibrosis (CF) journey and why the fight never stops for the CF community.
I’d been living with a low white blood cell count for about six years when a biopsy showed a rare type of bone marrow cancer called MDS.
We were out trick-or-treating on Halloween, and partway through the night, with only half a bag of candy, Parker looked up and me and said, ‘My legs hurt too bad. I want to go home.
When I look at my scars in the shower, it reminds me of what happened on January 19th, 2014, and of how brave and strong I was that day.
Jenna and I have both had retinitis pigmentosa (RP) since birth, so we’ve never really thought of it too much as a hindrance or a disability.
When I was in primary school, I was in trouble so often that my mom was on a first-name basis with the principal. Just little stuff, nothing too serious.
For a few years, I could feel that something wasn’t right with my body. My heart often raced and I had migraines, dizziness, and blurred vision.
Patient Voice spoke with Dave Mosher about how his daughter Victoria keeps him positive and reminds him to never take anything for granted.
Patient Voice spoke with an anonymous migraine sufferer about life with chronic pain and the struggles of being taken seriously with an invisible disease.
Four years ago, I was a fit and healthy 21-year-old with an active social life and a tough job in the restaurant industry, where I was on my feet for hours at a time.
Patient Voice spoke with Liz Trinnear, a Canadian TV correspondent living with a rare skin condition called epidermolysis bullosa, about self-confidence in the public eye.
Patient Voice spoke with Anil Singh about alopecia and how he’s adapting lessons from his experience into his art.
Patient Voice spoke with Neil Salinas about his sister Alison’s battle with cervical cancer, and why it’s so important to keep fighting for early diagnosis in younger patients.