Patient Voice spoke with Leanne and Brian Michalofsky about their lifelong search for answers and a sense of normalcy for their son Luke.

Patient Voice spoke with Jared Wayland from St. Catharines, ON about his SMA type III diagnosis and how it has impacted his life and fatherhood.

Patient Voice spoke with Chanika Fernando and her husband Dean about their daughter Anaya, and what it’s like to be parents to a child who’s an N of 1.

Patient Voice spoke with author Erin Paterson about confronting her Huntington’s disease diagnosis and what it might mean for the future.

Patient Voice spoke to Francine Saliba about Sanfilippo syndrome, a rare neurodegenerative condition that affects her young son, Joseph.

Our son Beau’s rare disease diagnosis turned our world, and our marriage, upside down. Fortunately, my husband and I were able to learn how to grieve independently, support each other when needed, and overcome our shared fear of divorce.

This piece was written by Brad Crittenden, the Executive Director of the Canadian Association of Pompe (CAP).

‍Patient Voice spoke with William Aiello to learn more about Mario La Valle and his incredible accomplishment.

‍Patient Voice chatted with Canadian singer-songwriter Lilianna Wilde to discuss her personal experience with rare disease, the lessons all Canadians can learn from stories like her father’s and why everyday kindness is so important.

Throughout her daughter Bella's ongoing health challenges, Kyla Thomson (@kylact) has found support, encouragement and connection through social media platforms like TikTok and Instagram.