Primary Sclerosing Cholangitis
At just 16 years old, Afsana Lallani was diagnosed with a rare liver disease. Only a few short years later, she found herself in urgent need of a life-saving organ transplant.
Rheumatoid Arthritis
Linda Roy has spent the majority of her life immunocompromised. Now, from her home in a remote New Brunswick community, she’s turned her experience into a passion for helping others.
Diffuse large B-cell non-Hodgkin lymphoma
In late 2020, when Paula Hall should’ve been basking in the newness of motherhood, she was instead thrust into intensive treatment for a rare blood cancer.
Learn about the CIAN's position on the challenges and recommendations for achieving an equitable future for immunocompromised Canadians.
In 2020, a survey by Statistics Canada found that approximately 14% of Canadians aged 15 years or older are living with compromised immune systems. In other words, over 5,450,200 Canadians are immunocompromised.
Patient Voice spoke with Nick Veloce about his twin griefs over the loss of his wife and, due to a horrible accident shortly after, his mobility.
Normalizing the dialogue around one’s preferences and expectations helps patients have a life they believe is worth living.
Medical advancements and a new grassroots patient community are helping to rewrite the stories of Canadians impacted by rare and aggressive biliary tract cancers, like Jennifer Nielsen.
Industry Voice spoke with Adesh Vora, Founder, President, and CEO of SRx Health Solutions, to explore the patient care gaps that inspired him to found his company, discuss the challenges associated with delivering patient-centric care models, and learn why he’s optimistic that the future will be bright for those living with chronic illness and rare disease.