Patient Voice spoke with nine-year-old Simon Hoskins and his mother, Becs, about Simon’s journey with Morquio syndrome, the challenges he faces, and how he continues to remain positive and resilient in the face of a rare disease.

Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.‍

Bardet-Biedl syndrome (BBS) has touched nearly every aspect of Natasha Rivard’s young life. Now, as she enters adulthood, her mother, Annie, is pausing to reflect on just how far she’s come.

Industry Voice sat down with Christophe Griolet, General Manager of Gilead Sciences Canada, to discuss how he applies global learnings in a local context, his commitment to health equity, and the incredible promise of personalized medicine.