Confronting the uncertainty of Fabry disease with hope and practicality

Illustrating the reality of migraine: Shruti’s struggle to be taken seriously

Migraine

Thirteen thousand kilometres from home and incapacitated by the fog of migraine, Shruti couldn’t work, couldn’t parent, and was beginning to lose hope in an easier future. But, with the help of the migraine community, she was able to find her voice.

Understanding C3G and IC-MPGN

Patient Voice spoke with Dr. Jocelyn Garland to learn about two ultra-rare forms of kidney disease that can lead to kidney failure if untreated: C3 glomerulopathy (C3G) and immune complex-mediated membranoproliferative glomerulonephritis (IC-MPGN).

Connecting the dots: How AI is unlocking new potential in rare disease diagnosis, treatment, and support

AI tools are helping patients, caregivers, and clinicians make sense of complex health data — and turn insights into action.