Authentic friendships, both in-person and online, became a lifeline for me. They offered strength and allyship when I needed them most.
Bardet-Biedl syndrome (BBS) has touched nearly every aspect of Natasha Rivard’s young life. Now, as she enters adulthood, her mother, Annie, is pausing to reflect on just how far she’s come.
While cutaneous T-cell lymphomas are extremely rare, they’re also easily misdiagnosed. If you’re experiencing unexplained skin-related symptoms, knowing what to look for and which tests to request can help expedite diagnosis.
COVID-19
When Jana Ray contracted COVID-19 in early 2023, the virus almost put her in the hospital. Later that year, when she tested positive again, she and her husband, Ivan, had a plan.
Learning how to speak up and advocate for oneself can greatly impact patients’ care and health outcomes.
New therapies have been shown to potentially slow the progression of spinal muscular atrophy (SMA) — so why are many adult patients unable to access them?
Breast Cancer
Patient Voice spoke with Seana Shallow about being diagnosed with triple-negative breast cancer the day before she turned 27, and how it has pushed her to redefine her vision of the future.
Proximal femoral focal deficiency
Patient Voice spoke with Nasif Chowdhury about growing up with a limb difference, and his path to representing Canada in wheelchair basketball.
Juvenile Idiopathic Arthritis / MAS
Patient Voice spoke with gym owner and powerlifter Zac Spinosa about the experience that turned his life upside down, and the roles movement and community have played in his recovery.
Undiagnosed genetic condition
Patient Voice spoke with Jeff Norgren and Michelle Hooey about how their youngest daughter Goldie has changed their lives for the better, and why they’ve chosen to share their rare disease journey with the world.
Acute myeloid leukemia (AML)
Patient Voice spoke with Jessie Willis about her blood cancer journey, and how her experience as a patient has helped to make her a better doctor.
Patient Voice is an independent, Canadian-owned digital publisher and online community devoted to elevating the voices of patients, caregivers and clinicians as a means of effecting meaningful and positive change.
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