Opinion: Sufferers of rare diseases need early access to new treatments
Building a good life in a body slowly turning to bone
Unravelling a family's ties to Fabry disease
Teaming up to take on ALS
Going to bat against a rare metabolic disorder
Balancing young adulthood with a fatiguing rare disease
Coming of age with XLH
On seeking joy following a rare cancer diagnosis
An all-too-common concern for Canada’s “rare” community
Meet Our Rare Disease Experts

Patient Voice spoke with 11 rare disease experts from across Canada to learn about a range of important topics, including diagnosis, genetic testing, clinical trials, access to medicines, and mental health.